Finally the post that brings us up-to-date, whew! Last Friday we met with Dr. Chao to find out if we qualified for any of the trials and to get an updated CT scan, EKG and blood work. It was a busy day filled with small kindnesses and disappointing news. We woke up hopeful, as we had been sitting around waiting and trying to battle this disease with broccoli, acai, pomegranates and sheer will. We needed something to happen.
While drinking the "cocktail" prior to the next CT scan (Bobby was bundled up in his usual layers of clothes that he can quickly shed when his body temperature drastically skews in the other direction) a woman who was there waiting for her husband came over to us and gave Bobby a blanket to keep. Being rookies to this scene, we had not packed sufficiently for our outing, and this small gesture really meant a lot to us.
We finally got up to meet with the doctor and to discuss next steps. I had emailed the doctor very concerned about how rapidly he seemed to be declining and that we couldn't wait any longer. He showed us the new CT scan of his liver and compared it to the original from a month earlier and we were shocked to say the least. Both tumors in his liver had grown drastically and many more lesions had popped up. He agreed we could no longer delay for the trial and we scheduled chemo for Tuesday (tomorrow).
Unfortunately, we found out later in the day, that he did not have the PDL1 marker to go in to the immunotherapy trial. We are looking forward to actively fighting this disease and keeping our eyes out for other trials.
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